Find Out How This Boy Has Survived Without a Skull
https://youtu.be/T-zfV6ecSAQ
Jaxon Buell was born last August with Microhydranencephaly, an uncurable malformation of the brain. He is missing most of his brain and skull. About one in 4,859 babies in the United States will be born with Anencephaly and the marjority die shortly after birth, according to the Center for Disease Control and Prevention.
Microhydranencephaly can cause microcephaly and scalp rugae which means Jaxon’s head is smaller than normal and his scalp is ridged – but that doesn’t stop Jaxon from laughing and playing like any other baby.
Brittany Buell, Jaxon’s mom, has given up her job to care for this miracle baby and has since launched a crowdfunding page to help with Jaxon’s medical bills.
On the page, she and husband Brandon wrote: “Jaxon has already shown how strong, smart, and special he is, accomplishing feats that doctors doubted he’d ever be able to do. He shows improvements each and every day, and just reached a miraculous milestone in celebrating his first birthday. These funds help pay for our regular monthly expenses and Jaxon’s continuous medical care, which changes frequently.”
The family have so far raised an impressive $54,902 of their $70,000 target and are now encouraging people to give them support for Jaxon’s “year two.”
Jaxon’s father spoke out this past weekend about the abuse he’s received after their inspirational story went viral. Some have said that Brandon and his wife Brittany are selfish and should have aborted the child to avoid the pain he is suffering. These internet commenters also question why the couple would bring Jaxon into a world where he will likely never be able to walk, talk, hear, see or know that he is hungry.
“Jaxon was our baby,” Brandon explained, “and we only had one shot to do everything we could for him.” Brandon also added that he and Brittany didn’t want to ‘play God’ by aborting Jaxon. Besides, Jaxon is already showing the naysayers wrong: He’s learned to say “mama.”
As rare as Jaxon’s long-term survival is, his parents are determined to fight for their son’s life. “There are cases of Microhydranencephaly children who have lived into their 30s,” Brandon says. “They have lived relatively normal lives, can learn to swim, and have and can use their senses, as well.”
As for those who accuse the couple of exploiting the public with their GoFundMe page, Brandon explains: “The longer we can afford to keep Brittany home with Jaxon, the longer he can remain stimulated from that priceless mother-to-son relationship that no one else can give and is one of the main reasons we believe that Jaxon is still here with us and is doing as well as he is.”
Despite the negativity surrounding them, the Buell family plans to keep working with top neurologists who may be able to help Jaxon live as long as possible. Also, there’s so much that science can learn from Jaxon and how Anencephaly works. He truly is a miracle baby who may lessen the suffering of others like him.